Global Genes Partners with Ambry Genetics for ‘Sharing is Curing’ Donation Campaign
ALISO VIEJO, Calif.–(BUSINESS WIRE)–#SharingIsCuring—Global
Genes is proud to partner with Ambry
Genetics, a leader in clinical genetic diagnostics and genetics
software solutions also based in Aliso Viejo, by reaching out to the
rare disease community through its “Sharing is Curing” donation
campaign. This campaign emphasizes the value of sharing genetic data to
help the scientific and medical communities better understand human
disease.
“Global Genes always looks to partner with organizations that are
innovating and doing what is right by the patient,” said Global Genes
Founder and CEO Nicole Boice. “The first of its kind, the ‘Sharing is
Curing’ campaign is promoting the importance of patients’ data to help
advance discoveries in diagnosis and drug discovery, and making this
critical data available without any roadblocks.”
Ambry Genetics is a natural fit for this initiative as it recently
launched AmbryShare,
its program that fosters a global scientific community that freely
shares vital genetic data to accelerate the understanding of human
disease. Currently, AmbryShare gives the scientific community access to
anonymized aggregate data on 10,000+ consented patients.
“To think that 17 years after the human genome project, and 5 years
since we’ve been able to cost-effectively sequence exomes and genomes,
not much is publicly known about the genetics of major disease? BOTH
Global Genes and Ambry Genetics are committed to bringing the industry
out of the dark ages for the betterment of all mankind,” said Ambry
Genetics Co-Founder and CEO Charles Dunlop. “The first step is in
understanding the genetic makeup of all human disease. Sharing is indeed
curing.”
For every Ambry Facebook
page “like” and/or Ambry Twitter
follow, Ambry Genetics will donate $1 to Global Genes. Monies raised
from this campaign will support Global Genes’ programs and resources
that have direct patient impact. For information about this campaign,
and to donate or share the campaign on social media, please visit sharingiscuring.net.
About Global Genes®
Global Genes is a leading global rare disease patient advocacy
organization. The group’s mission is to Eliminate The Challenges Of
Rare Disease, by providing patients with educational tools, building
awareness, providing critical connections and support for affected
disease communities, patients and families. Recognized worldwide by the
Blue Denim Genes Ribbon®, Global Genes unites experts, advocates and
patients of all ages to stand together in hope for treatments and cures
for the estimated 7,000 rare genetic diseases that impact approximately
30 million Americans and over 350 million people worldwide.
About Ambry Genetics®
Ambry Genetics is a privately-held healthcare company with the most
comprehensive suite of genetic testing solutions for inherited and
non-inherited diseases. Since 1999, Ambry has tested approximately half
a million patient samples benefiting 90% of all U.S. patients covered by
public and private insurers. Ambry is dedicated to scientific
collaboration by offering its rapidly growing AmbryShare database (www.AmbryShare.com)
of anonymized aggregate patient records free to the global medical
research community to fulfill the promise of the human genome to cure or
manage all human disease. Ambry is dedicated to the belief that human
health should not be patented or owned, and genomic data should be
freely shared so we can try to cure all disease.
Contacts
Global Genes
Angie Rowe, 949.248.7273
angier@globalgenes.org
